Anna Kole
About:
Anna Kole is a public health professional working with EURORDIS for 13 years, where she is Public Health Policy Director. She recently led the Rare 2030 Foresight to propose recommendations for the future of rare diseases policies in Europe. Previous positions include representing EURORDIS in research consortia (e.g. International Rare Disease Research Consortium), a range of policy and patient engagement activities at Orphanet and NORD, and volunteer charity sales for patient organisations
languages
English, Polish, French
Expertise:
Experience:
EURORDIS - Rare Diseases Europe
Director at EURORDIS - Rare Diseases Europe
13 years 5 mth • January 2009 - June 2022 • Paris, France
Public Health Policy Director