Anna Kole

Anna Kole

France, Paris
Profession: Public Affairs Professional
Industry: Civil Society/NGO

About:

Anna Kole is a public health professional working with EURORDIS for 13 years, where she is Public Health Policy Director. She recently led the Rare 2030 Foresight to propose recommendations for the future of rare diseases policies in Europe. Previous positions include representing EURORDIS in research consortia (e.g. International Rare Disease Research Consortium), a range of policy and patient engagement activities at Orphanet and NORD, and volunteer charity sales for patient organisations

languages

English, Polish, French

Expertise:

Advocacy

Experience:

EURORDIS - Rare Diseases Europe

Director at EURORDIS - Rare Diseases Europe

13 years 5 mth • January 2009 - June 2022 • Paris, France

Public Health Policy Director
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